Research & Publications

View our START Research & Publications flyer as a pdf


Evaluation of the START Crisis Intervention and Prevention Program

Funder: National Institute of Child Health and Development
Description: The specific aims of the project are to conduct a prospective cohort study to examine one year pre-post changes in: 1) Individuals’ psychiatric symptoms (using the Aberrant Behavior Checklist; Aman, 1985); 2) caregivers’ perceived support from and access to mental health care for their dependent (assessed via the Family Experiences Interview Schedule; Tessler & Gamache, 1993); and, 3) psychiatric hospitalization rates. Building evidence around START holds important implications to improving outcomes for this population who face numerous challenges once they graduate from the educational system. 

Measuring the Impact of START Services Intervention on Emergency Room and Psychiatric Inpatient Use

Funder: Special Hope Foundation
Brief description: People with intellectual/developmental disabilities (IDD) and co-occurring behavioral health needs typically experience gaps in appropriate health services. The UNH Center for START (Systemic, Therapeutic, Assessment, Resources and Treatment) Services provides an array of services to meet the mental and physical health needs of people in this group. Overall, these services can reduce the need for crisis healthcare.  This quasi-experiment will compare Iowans with IDD and behavioral health needs receiving START services (intervention) with peers receiving usual care (control), examining the impact of START services on psychiatric emergency room (ER) visits and inpatient psychiatric stays.  


Brief description: Analyses designed to assess the effectiveness of a region’s community system of care in addressing the needs of individuals with intellectual/developmental disabilities and co-occurring mental health conditions. Multiple methods are utilized including the review of mental health expenditures, focus groups, online surveys and telephonic family caregiver interviews. Recommendations for improved service effectiveness are offered to the state or region following the analyses.


The State of Indiana
New York City (Brooklyn, Queens, Staten Island, Manhattan and Bronx), New York
Long Island (Sussex and Nassau counties), New York

Current Analyses: Children's Service System Analysis for the state of North Carolina.

PUBLICATIONS (1988 - Present)

Click on bold red links below to view 

Beasley, J.B., Weigle, K., & Klein, A. (2016). Diagnostic, Treatment and Service Considerations to Address Challenging Behavior: A Model Program for Integrated Service Delivery. Health Care for People with Intellectual and Developmental Disabilities Across the Lifespan (pp. 1629-1644). New York, NY: Springer.

Charlot, L. & Beasley, J.B. (2013). Intellectual Disabilities and Mental Health: United States-Based Research. Journal of Mental Health Research in Intellectual Disabilities, 6 (2), 74-105.

Beasley, J.B. (2013). US Public Policy Update: Crisis Intervention Approaches in the Community: Food Drops or Farming. The NADD Bulletin.

Moser, J. (2012). Improving Preparedness and Flexibility in Web-Based Trainings for North American START Teams. The NADD Bulletin, 15(5), 89-90.

Beasley, J.B. (2012). The United States V The State of Georgia 2010 Olmstead Settlement Agreement: U.S. Public Policy Implications. The NADD Bulletin.

Hurley, A.D. & Beasley, J.B. (2011). Using Web-Based Technology in Consultation for the National START Teams. The NADD Bulletin, 14(1).

Hinton, J. & Beasley, J.B. (2010). US Public Policy Update: North Carolina Systemic, Therapeutic, Assessment, respite and Treatment: NC START. The NADD Bulletin, 13(3) 58-59.

Beasley, J. B. (Ed.) (2007). U.S. Public Policy: Assessment of Services for Individuals with Developmental Disabilities and Mental Health Needs [Special issue]. Mental Health Aspects of Developmental Disabilities. 10(3).

Rubin, I.L., Fahs, J.J., & Beasley, J.B. (2007) Delivery of Health Care for People with “Dual Diagnosis”: From the Person to the Policy. Mental Health Aspects of Intellectual Disabilities, 10(3), 2-11.

Martin, K,, Robson, S., Beasley, J.B., Dailey, T. & DuPree, K. (2006). Transitional Housing to Reduce Inpatient Stays. The NADD Bulletin, 9(4), 82.

Beasley, J.B. (2005). Crisis Prevention and Management. In I. L. Rubin & A. C. Crocker (Eds.), Medical Care for Children and Adults with Developmental Disabilities (pp. 510-517).  Baltimore, MD: Paul H. Brookes Publishing.

Horner, R, Dunlap, G., Beasley, J., et al. (2005). Positive Support for Behavioral, Mental Health, Communication and Crisis Needs. In K. C. Lakin and A. Turnbull (Eds.) National Goals and Research for People with Intellectual and Developmental Disabilities [White Paper] (pp. 93-107). Washington, DC: The ARC of the United States & AAMR.

Beasley, J.B. (2004). How well does your state serve people with co-occurring mental illness and intellectual disabilities? The NADD Bulletin, 7(4), 78-79.

Beasley, J.B. & Hurley, A.D. (2003). The Design of Community Supports for Individuals with Developmental Disabilities and Mental Health Needs. The Mental Health Aspects of Developmental Disabilities, 6(2), 81-85.

Beasley, J.B. (2004). Importance of Training and Expertise to Assess “What Works” for Individuals with Intellectual Disabilities. Mental Retardation, 42 (5), 405-406.

Beasley, J.B. & DuPree, K. (2003). A systematic strategy to improve services to individuals with coexisting developmental disabilities and mental illness: National trends and the "Connecticut Blueprint." Mental Health Aspects of Developmental Disabilities, 6, 50-58.

Fletcher, R. & Beasley, J.B. (2003). Three US Public Policy initiatives to improve services to people with co-occurring developmental disabilities and mental illness. The NADD Newsletter, 6(3), 60-61.

Beasley, J.B. (2003). The START/Sovner Center Model. The NADD Newsletter, 6(3), 57-59.

Beasley, J.B. (2002). Trends in coordinated and planned mental health service use by people with dual diagnosis. In J. Jacobson, & R. Fletcher (Eds.) Contemporary Dual Diagnosis: MH/MR Service Models, Volume II: Partial and Supportive Services (pp. 35-51). Kingston, NY: NADD.

Beasley, J.B. & Kroll, J. (2002). The START/Sovner Center Program in Massachusetts. In R. Hanson, N.A. Wieseler, & K.C. Lakin (Eds.) Crisis Prevention and Response in the Community (pp. 95-127) American Association of Mental Retardation., Washington, D.C.

Beasley, J.B. (2001). Collaborative Services in Massachusetts: The START/Sovner Center Program. Impact, 14(1), 16-17.

Beasley, J.B. (2000). Family Caregiving Part III: Family Assessments of Mental Health Service Experiences of Individuals with Mental Retardation in the Northeast Region of Massachusetts from 1994 to 1998. Mental Health Aspects of Developmental Disabilities, 3(3).

Beasley, J.B. (2000). Why Individualized Habilitative Plans May Fail: When Challenging Behaviors are Symptoms of a Psychiatric Disorder.” Mental Retardation, 38 (2), 179.

Beasley, J.B. & Kroll, J. (1999). Family Caregiving Part II: Family Caregiver-Professional Collaboration in Crisis Prevention and Intervention. Mental Health Aspects of Developmental Disabilities, 2(1), 22-26.

Beasley, J.B. (1998). Long-term co-resident caregiving in families of persons with a dual diagnosis (Mental Illness and Mental Retardation). Mental Health Aspects of Developmental Disabilities, 1 (1), 10-16.

Fletcher, R., Beasley, J., & Jacobson, J., (1998). Support Service Systems for people with Dual Diagnosis in the USA. In N. Bouras (Ed.) Psychiatric and Behavioral Disorders in Developmental Disabilities and Mental Retardation (pp. 373-390).

Beasley, J.B. Trends in Coordinated Emergency and Planned Mental Health Service Use by People with Dual Diagnosis.


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