Presentation Title: Collaborative Research in IDD and MH with a PCORI Project Update: Reconciling the Past and Changing the Future
Presenters: Jessica Kramer, Destiny Watkins and Micah Peace (Part 1), and Jessica Kramer, Destiny Watkins, Micah Peace, Dr. Joan Beasley, Tawara Goode, Beth Grosso, and Fiorella Calle Guerrero (Part 2)
This presentation will define collaborative research and why it is important, particularly for people with IDD. It will provide several examples of ways to encourage the collaborative process. It will also provide outcomes on a specific research project around identifying needs and experiences of people with IDD-MH and their families. Finally, it will offer multiple things researchers need to consider around including people with lived experiences in their work.
- Define collaborative research and why it is important
- Recognize 8 Priority Areas for people with IDD and their families
- Identify ways researchers can be more inclusive of people with lived experiences
- Increase professionals’ knowledge on addressing the needs of people with lived experience around a variety of issues including, but not limited to, transition, hospitalization, medication and social supports